An evaluation of an online mindfulness programme for people with multi

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IBackground and study aims Multiple Sclerosis (MS) is a lifelong disease of the nervous system (i.e. the brain, spinal cord and optic nerves). Symptoms can vary from mild sensational problems such as tingling to severe disability. The cause is currently unknown and there is no cure. MS typically develops between the ages of 20 and 40 and is twice as common in women as men. Approximately 2.3 million people worldwide have a diagnosis of MS. MS is typically diagnosed in young to mid-adulthood, at which age, family and career are very important. Potential disruptions to social relationships due to mobility issues, sexual dysfunction and financial problems following employment issues can further impact on emotional wellbeing in people with MS. It is therefore not surprising that people with MS report feeling depressed, anxious, distressed, tired and in pain. Thus, the psychological well-being of people living with MS is also of great importance. Research indicates that mindfulness interventions have been found to alleviate MS-related symptoms. Mindfulness has been defined as ‘paying attention, in a particular way; on purpose, in the present moment and non-judgmentally’ and thus, can encourage more positive coping responses. The aim of this research is to develop an online mindfulness programme for people living with MS. Who can participate? Adults aged 18 and older who are diagnosed with MS. What does the study involve? Participants are randomly allocated to one of two groups. Those in the first group receive the MindfulnessforMS programme which consists of eight weekly sessions. Participants are contacted in order to be motivated to continue with the programme. Those in the second group are on a waiting list until after those in the first group are finished the progeamme. Participants are followed up at a three month follow up to assess their distress levels, severity of their symptoms, pain, anxiety symptoms, health-related quality of life and other aspects. What are the possible benefits and risks of participating? Participants may benefit from improvements in the quality of life, well-being and other MS- related symptoms. There are no direct risks associated with participating. Where is the study run from? Centre for Pain Research (Ireland) When is the study starting and how long is it expected to run for? March 2016 to February 2019 Who is funding the study? Irish Health Research Board and the Medical Research Charities Group Joint Funding Scheme (Ireland) Who is the main contact? Dr Chris Dwyer (Scientific) painresearch@nuigalway.ie