Nurse-Led Manualized Telephone Support Intervention
An Exploratory Randomized Controlled Trial of a Manualized, Nurse-led, Telephone Intervention Support Service for Support Persons of People With Multiple Sclerosis
What it found
We found no results in the registry or in papers.
This trial finished 13 years ago. We found no results in the registry or in any paper that cites it.
What was tested
Treatment tested
- Manualised nurse-led telephone support
What it measured
Main measures
Support person/caregiver Self-efficacy
3 months
Other measures (1)
Support person/caregiver preparedness to care
3 months
Who could take part
MS (type not specified) · 18 and over
Show the full criteria
Inclusion criteria
PwMS: * People who have a diagnosis of Multiple Sclerosis and are > 18 years of age. * PwMS who nominate a caregiver. Caregivers: * Informal caregivers of PwMS who do not have a serious mental health problem. Nurses: Nurse Specialists caring for PwMS and who agree to take part in the study.
Exclusion criteria
For PwMS: * PwMS who cannot nominate a caregiver * PwMS who are already engaged in similar research
As registered. Criteria can change, so ask the trial team or your neurologist.
About this trial
In the sponsor's words
The primary aim of this study is to determine if a manual based telephone intervention support service for people who support people with Multiple Sclerosis (PwMS), initiated by nurse specialists who provide care to PwMS, has a positive impact on the lives of PwMS and their support persons. For support persons this impact is determined by measurable support person/carer self-efficacy and preparedness to care, burden, quality of life, service utilization and satisfaction with the support service. For PwMS this is determined by their qualitative experience of the type of care they receive from their carer. A secondary aim is to determine the possible economic benefits of the introduction of such an intervention nationally. A support person is the person nominated by the PwMS as the person who provides the most support or physical assistance to a person with MS who is not a paid service provider.
Papers
Background
Tremont G, Davis JD, Bishop DS, Fortinsky RH. Telephone-Delivered Psychosocial Intervention Reduces Burden in Dementia Caregivers. Dementia (London). 2008;7(4):503-520. doi: 10.1177/1471301208096632.Background
Stewart MJ, Hart G, Mann K, Jackson S, Langille L, Reidy M. Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers. Int J Nurs Stud. 2001 Apr;38(2):209-25. doi: 10.1016/s0020-7489(00)00035-3.Background
Bormann J, Warren KA, Regalbuto L, Glaser D, Kelly A, Schnack J, Hinton L. A spiritually based caregiver intervention with telephone delivery for family caregivers of veterans with dementia. Fam Community Health. 2009 Oct-Dec;32(4):345-53. doi: 10.1097/FCH.0b013e3181b91fd6.Background
Bank AL, Arguelles S, Rubert M, Eisdorfer C, Czaja SJ. The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist. 2006 Feb;46(1):134-8. doi: 10.1093/geront/46.1.134.Background
Corry M, While A. The needs of carers of people with multiple sclerosis: a literature review. Scand J Caring Sci. 2009 Sep;23(3):569-88. doi: 10.1111/j.1471-6712.2008.00645.x. Epub 2008 Dec 9.
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History
Started
Apr 2011
Main results due
Oct 2013
Finished
Mar 2014