Organisations, forums and services people use

International · English, with some material in other languages · Multiple Sclerosis International Federation

An international federation of MS organisations that coordinates information, advocacy and research, and publishes the Atlas of MS.

For people with ms, families and carers, clinicians, researchers

United States · English · National Multiple Sclerosis Society

A national nonprofit supporting MS research, advocacy, education and help finding services.

For people with ms, families and carers, clinicians, researchers

United Kingdom · English · Multiple Sclerosis Society

The UK MS Society provides information about MS alongside support services, campaigning and research funding.

For people with ms, families and carers, clinicians, researchers

United Kingdom · English · Multiple Sclerosis Trust

A charity providing MS information, a helpline and resources for health professionals.

For people with ms, families and carers, clinicians

Canada · English, French · MS Canada

A national organisation supporting MS research, services, information and advocacy.

For people with ms, families and carers, clinicians, researchers

Australia · English · MS Australia

A national nonprofit funding MS research and providing information and advocacy.

For people with ms, families and carers, clinicians, researchers

Germany · German · Deutsche Multiple Sklerose Gesellschaft, Bundesverband e. V.

Germany's national MS association, providing information, counselling contacts and research updates.

For people with ms, families and carers, clinicians, researchers

France · French · France Sclérose en Plaques

A French MS organisation providing information about the disease, research news and ways to take part in its activities.

The former ARSEP address now leads here.

For people with ms, families and carers, clinicians, researchers

Italy · Italian · Associazione Italiana Sclerosi Multipla

Italy's MS association, providing information, services, advocacy and research funding.

For people with ms, families and carers, clinicians, researchers

Sweden · Swedish · Neuroförbundet

A Swedish patient organisation providing support and advocacy for people with neurological conditions, including MS.

Covers several neurological conditions, not only MS.

For people with ms, families and carers

Denmark · Danish · Scleroseforeningen

Denmark's MS association, providing information, counselling, community activities and research funding.

For people with ms, families and carers, clinicians, researchers

Norway · Norwegian · MS-forbundet

Norway's MS association, providing information, peer contacts, local activities and advocacy.

For people with ms, families and carers

Finland · Finnish, with some Swedish · Neuroliitto ry

A Finnish organisation, formerly Suomen MS-liitto, providing information and services for people with MS and some rare neurological diseases.

For people with ms, families and carers, clinicians

Spain · Spanish · Esclerosis Múltiple España

A Spanish federation providing MS information, advocacy and links to its member organisations.

For people with ms, families and carers, clinicians, researchers

Ireland · English · Multiple Sclerosis Society of Ireland

Ireland's MS organisation, providing information, community services and advocacy.

For people with ms, families and carers, clinicians

International · English · European Multiple Sclerosis Platform

A European umbrella body that represents national MS organisations through advocacy and joint projects.

For people with ms, families and carers, clinicians, researchers

Sweden · Swedish · Neuro Ung Med MS, a nonprofit patient association

A Swedish patient community with a forum, a library of personal experiences and the chance to put questions to a neurologist.

Aimed at people early in life with MS rather than a strict age group. Posts by members are personal experience.

For people with ms, families and carers

United Kingdom · English · Multiple Sclerosis Society

An online discussion forum for sharing experiences and questions about living with MS.

Peer discussion, not individual medical advice.

For people with ms, families and carers

International · English · Shift.ms, a UK-registered charity

An online community for people with MS, particularly after a recent diagnosis, with discussions and peer connections.

Posts by members are personal experience. Some features require registration.

For people with ms

United States · English · MyHealthTeam

A social network where people affected by MS share experiences and connect with others.

This is a commercial platform. Registration and sharing of personal data may be required.

For people with ms, families and carers

United Kingdom · English · MS-UK

A charity offering MS information, a helpline, counselling and wellbeing activities.

A support charity rather than a public discussion forum.

For people with ms, families and carers

Denmark · Danish · Scleroseforeningen

A network for young people with MS, with local coordinators, activities and peer groups.

A peer support network rather than an open forum.

For people with ms

Norway · Norwegian · MS-forbundet

Youth contacts, activities and the national youth committee for young people with MS in Norway.

A peer support network rather than an open forum.

For people with ms

Germany · German · DMSG Landesverband Hamburg e. V.

Meetings, self-help groups and psychologically supported activities for younger people with MS in Hamburg.

Regional service.

For people with ms

United Kingdom · English · NHS

Public health information covering symptoms, diagnosis, treatment and living with MS.

Care pathways described are specific to the UK.

For people with ms, families and carers

United States · English · National Institutes of Health

An overview of MS biology, symptoms, treatment and research from the US National Institute of Neurological Disorders and Stroke.

For people with ms, families and carers, clinicians, researchers

United States · English · Mayo Clinic

A clinical information page explaining symptoms, risk factors, causes and complications of MS.

For people with ms, families and carers

Sweden · Swedish · Sweden's regions, through 1177 and Inera

Swedish public healthcare information about MS symptoms, investigations, treatment and everyday life.

Guidance is written for the Swedish healthcare system.

For people with ms, families and carers

United States · English · Multiple Sclerosis Association of America

A nonprofit providing MS education, support programmes and practical assistance.

Assistance programmes have eligibility and geographic conditions.

For people with ms, families and carers

United Kingdom · English · Multiple Sclerosis Trust

An alphabetical reference covering MS symptoms, treatments, tests and related topics.

For people with ms, families and carers, clinicians

International · English · Overcoming MS

A charity offering a structured lifestyle programme covering diet, activity and wellbeing with MS.

A lifestyle programme, not a disease-modifying treatment. Evidence differs between its parts, and it is not a substitute for medical treatment.

For people with ms, families and carers

United States · English · National Multiple Sclerosis Society

Videos on MS education, research discussions and personal stories.

For people with ms, families and carers, clinicians, researchers

United Kingdom · English · Multiple Sclerosis Society

Videos on MS information, research, campaigns and lived experience.

For people with ms, families and carers

United Kingdom · English · Multiple Sclerosis Trust

Explanations of MS and conversations with people with MS and health professionals.

For people with ms, families and carers, clinicians

International · English · Shift.ms

Interviews, short films and discussions about living with MS.

Includes personal experience.

For people with ms, families and carers

United States · English · Aaron Boster, MD, The Boster Center for Multiple Sclerosis

The neurologist Aaron Boster explains MS symptoms, treatments and care in a long-running video series.

This presents one clinician's views and is linked to a private practice. It is not personal medical advice.

For people with ms, families and carers, clinicians

International · English · European Committee for Treatment and Research in Multiple Sclerosis

Videos from Europe's main MS research society on research findings, professional education and events.

For people with ms, clinicians, researchers

International · English, with some other languages · Multiple Sclerosis International Federation

International MS information, research discussions and awareness material.

For people with ms, families and carers, clinicians, researchers

United States · English · Jon Strum

A weekly podcast hosted by Jon Strum with interviews on MS research, treatments, advocacy and daily life.

For people with ms, families and carers, clinicians, researchers

United Kingdom · English · Multiple Sclerosis Trust

Interviews with specialists and people with MS about symptoms, treatments and daily life.

For people with ms, families and carers, clinicians

United Kingdom · English · MS-UK

MS-UK's podcast on experiences and topics relevant to living with MS.

For people with ms, families and carers

International · English · European Committee for Treatment and Research in Multiple Sclerosis

Researchers, clinicians and advocates discuss MS research, treatment and care, including episodes made with Multiple Sclerosis Journal.

Funded by educational grants from pharmaceutical companies. ECTRIMS states they have no input into content.

For clinicians, researchers, people with ms

Canada · English · Ardra Shephard

The writer and television presenter Ardra Shephard writes about her own life with MS and disability.

Personal experience, not medical advice.

For people with ms, families and carers

United Kingdom · English · Professor Gavin Giovannoni

The neurologist Gavin Giovannoni comments on MS research, treatment and self-management.

One clinician's opinions, not personal medical advice. Some posts require a paid subscription.

For people with ms, clinicians, researchers

International · English · US National Library of Medicine

The US registry of clinical studies, filtered to multiple sclerosis, including studies run outside the US.

Being registered does not mean a treatment works or is endorsed.

For people with ms, families and carers, clinicians, researchers

European Union · English, with other EU languages · European Medicines Agency and European Commission

The public search portal for clinical trials authorised in the EU and EEA.

Search for multiple sclerosis within the portal.

For people with ms, clinicians, researchers

International · English · US National Library of Medicine

A search of the biomedical literature for publications on multiple sclerosis.

Some full texts require payment.

For clinicians, researchers, people with ms

International · English · Sage Publishing

A peer-reviewed journal for research on MS and related diseases, and the official journal of ECTRIMS.

Many articles require a subscription.

For clinicians, researchers

International · English · European Committee for Treatment and Research in Multiple Sclerosis

A professional society running Europe's main MS research congress, education and research collaboration.

For clinicians, researchers, people with ms

North America · English · Americas Committee for Treatment and Research in Multiple Sclerosis

A professional society supporting education and collaboration in MS and other demyelinating diseases across the Americas.

For clinicians, researchers

International · English · International Multiple Sclerosis Genetics Consortium

An academic consortium studying inherited influences on MS risk, biology, course and treatment response.

For researchers, clinicians

International · English · MS Data Alliance

An international initiative helping researchers share and reuse real-world MS data.

Access to data depends on each project's governance.

For researchers, clinicians

Sweden · Swedish · Svenska neuroregister

The MS section of Sweden's national neurological quality registry, which follows care and outcomes for people with MS.

Individual data are not publicly available.

For people with ms, clinicians, researchers

United Kingdom · English · Swansea University, supported by the MS Society

A research register in which people with MS in the UK contribute information about their condition.

For people with ms, clinicians, researchers

United States · English · Consortium of Multiple Sclerosis Centers

A voluntary registry collecting information reported by people with MS for research.

For people with ms, clinicians, researchers

International · English · International Progressive MS Alliance

An international collaboration of MS organisations funding and coordinating research on progressive MS.

For people with ms, families and carers, clinicians, researchers

United Kingdom · English · Multiple Sclerosis Society

An outline of benefits and financial support available to people affected by MS.

Rules differ between UK nations and change over time.

For people with ms, families and carers

United Kingdom · English · Multiple Sclerosis Society

A guide to employment decisions, telling an employer and workplace adjustments.

This concerns UK employment law, not individual legal advice.

For people with ms, families and carers

United Kingdom · English · Multiple Sclerosis Society

Workplace support and legal rights for people caring for someone with MS.

UK law.

For families and carers

United Kingdom · English · Multiple Sclerosis Society

Information on physical activity and how to adapt exercise to MS symptoms.

For people with ms, families and carers, clinicians

United Kingdom · English · Multiple Sclerosis Trust

Information and exercise routines to support physical activity with MS.

Exercises may need adapting with a physiotherapist.

For people with ms, families and carers, clinicians

United Kingdom · English · Multiple Sclerosis Trust

Information about caring, care arrangements and support for carers.

For families and carers, people with ms

United Kingdom · English · Multiple Sclerosis Trust

Planning a pregnancy, pregnancy itself and how MS treatments are managed around it.

Decisions about medicines in pregnancy need advice from the treating team.

For people with ms, families and carers, clinicians